Outlive Yourself : Stories & Updates

Organ Donation's Biggest Fan: Clutch "The Rockets Bear"

Posted by Guest Writer

28

Mar

2016

Written by Robert Boudwin, aka Clutch "The Rockets Bear"

Abouttorun...In 2011 after my Dad had suffered for four years from IPF - a degenerative and terminal lung disease that has no known cure or treatment - his health was getting rapidly worse and the only solution left was a lung transplant. Knowing that someone you love is in need of an organ transplant is a nerve wracking experience. Because organs are in high demand and short supply, doctors must ensure that organs go to those patients who can benefit the most. To be a candidate you need to be sick enough to significantly benefit from a transplant, but not so sick that the transplant won’t help if there are other problems. The only thing we could do was hope and pray for a donor before things got worse.

(Photo: With my now wife Amy after running

13.1 miles for organ donation)

Finding Out It’s Time for a Transplant

On February 2, 2012, I brought my twin boys, Jack and Luke, to visit my parents. Upon entering the house, I immediately realized the condition of my father was critical. Even with oxygen, my dad could barely get out of bed; he could not even get through an entire sentence when speaking. After speaking with him, I convinced him to let me call his doctors and speak to them about the current situation… which resulted in rushing him to the ER. We came to find out that the disease had significantly taken hold of my father’s body, deteriorating what little was left of his lungs, which was compounded by a severe case of pneumonia. Doctors saved his life that day. They said that if he hadn’t come in when he did, there was a good chance he could have died. My father spent a week in the hospital, receiving high doses of steroids and antibiotics as well as other medication. We were told that he only had a few months to live without a transplant.

Within seven days my father was placed on the transplant waiting list. A week later, on February 15th, my dad received a successful double lung transplant that saved his life. Something that will, God willing, allow him to see his grandchildren grow up and continue to dance to the Beach Boys with their Pop-Pop. :)

The roller coaster of emotions felt through the process of all of this is hard to put into words; everyone is experiencing something unique and the collision of joy and pain is different for everyone. In the early morning hours of February 15th, when my mother, brother, and I were huddled around my father’s bed awaiting news about final go ahead, he cried. We asked, “Dad, are you OK?” He responded, “Someone had to die for this chance for me.”  

Meeting Our Donor’s Family

listeningtothelungs

 

 (Photo: My dad and the parents of his donor, Ian, listening to his lungs)

When I met the parents of Ian, the generous young man who saved my father’s life, the experience was surreal. As I imagined the pain of what it must be like to lose a child without actually knowing what it felt like, I started to cry uncontrollably. Rob, Ian’s dad, grabbed me and hugged me.  A man I had never known was consoling me about the loss of his son, a young man who I had never met and would never meet.

Janis, Ian’s mother, kissed my cheek. The couple shared with me that meeting our family didn’t hurt more, it hurt less. It gave them a way to feel like Ian was still with them and gave them further closure. I was speechless at their willingness to help us through our grief with a face and name that had given us a second chance. I introduced my twins. We all became instant family. I don’t know how they summoned the grace and power to meet us, but it forever changed my life and set an example of how to LIVE! Thank you, Rob and Janis.

HeidemannsBoudwinsKingsReggiegotheartBrownhillsRachelgotkidneyPancreas

(Photo: Becoming instant family - Heidemann's, Boudwin's, King's (heart recipient), and Brownhill's (kidney & pancreas recipient))

HissonsavedtheirPop-Popslife

(Photo: My father and his grandsons, Jack and Luke, with Rob - his son saved their Pop-Pop's life!)

Serving a Greater Purpose

What a journHavingjustfinished13.1milesfororgandonationwithmynowwifeAmyey it has been these last three years!  Surreal, grief stricken, terrifying, humbling, devastating, life changing, overwhelming, awe inspiring, victorious, purpose driven, and absolutely LIFE SAVING! Ever since my father’s transplant I have been on fire for organ donation. With the help of TEAM CLUTCH, I have run long distances in “full gear” (in the Clutch the Bear costume) in an effort to fundraise and raise awareness for organ donation. For the next three years I will serve on the corporate board of directors of LifeGift, a $50 million per year Organ Procurement Organization (OPO), where I help by serving as one of the 18 volunteer owners of the non-profit. I am also honored to have joined the board of the Todd Krampitz Foundation, a Houston based organ donation awareness non-profit organization in January. And now, I am excited to be a part of what Taylor’s Gift is doing.

(Photo: About to run for organ donation!)

Teaming Up with Taylor’s Gift

Clutch_and_Tara_Storch,_Co-FounderWhen Tara Storch, co-founder of Taylor’s Gift, reached out to me through mutual friends in February of 2015, we became instant friends. We teamed up to promote the Taylor’s Gift Houston Golf Tournament at the Topgolf in Spring, Texas last May and are teaming up again to promote the same event for this year! Funds raised at the event will benefit the mission of Taylor’s Gift Foundation.

Taylor’s Gift works to spread the word about organ donation while also providing financial help and support to donor families left in the wake of immense loss and grief.

Register to Play or Sponsor

I can already tell that my wife Amy and I will be long term friends and allies with Tara and her husband Todd both personally and in our joint effort to get everyone to say YES to organ donation.  I love their added mission of helping donor families going through financial hardships in the aftermath of losing a loved one.

My mission is to try to inspire as many people as possible for the rest of my life to self designate themselves as organ donors and give the greatest gift of all, the GIFT OF LIFE!  Click the button below to learn about how you can register as an organ donor TODAY!  It will take you only 60 seconds and may one day save several lives. You never know, an organ donor may even save your life, or the life of someone you love.

#OutliveYourself. 

Click to Find Your State's Organ Donor Registry

 

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